Data requests

C-support collects and manages data from various studies. Below you will find an overview of the various studies from which data can currently be requested:

• Multi-year Long COVID study
• Multi-year QVS database research
• Other data on request

Our data can be requested in various forms. In addition to the delivery of data, you will receive an explanation of the data used and advice on the interpretation. The various forms to request data are:

Data file(s) at record level

Record-level data files are datasets in which each row represents a separate individual or observation. These files contain detailed information per record, such as characteristics and specific measurements. This makes them suitable for in-depth analyses and discovering patterns at the level of individual units. You can perform your own analyses with these data files.

Analyses: summary table(s) and/or graph(s)

Depending on your wishes, we can create customized summary table(s) and/or graph(s) for you. These are data aggregated at group level, for example by grouping by categories, such as age groups or gender. A table does not contain individual data, but averages, totals, or other summaries to analyze patterns and trends. For a graph, you can think of a bar chart of the five EQ-5D-5L domains for different age groups.

Analyses: statistical test(s)

Statistical tests can also be performed by us. For example, think of tests to statistically compare two or more different groups, such as age groups, or multivariate analyses. Depending on your wishes, we can create an analysis plan together and perform analyses.

Note:
Because C-support is concluding its operations as of January 1, it is unfortunately no longer possible to process every data request. Please contact touch with contact us to discuss what is still possible.

Processing your data request and delivering the requested data may involve costs for the execution thereof. Depending on the size and complexity of the requested data and/or analyses, costs may be determined after evaluation of your data request. These will be presented to you by means of a quotation.

Conditions for data requests

We set conditions for the use of our data. In short, these consist of:

• Data can only be requested for (scientific) research.
• A data request must contain a clear and specific research description, including a concrete plan with clearly defined and delimited research questions.
• The requested data must be relevant and necessary for answering the research questions. These data may only be used for the purpose for which they were requested.
• Researchers are only given access to the specific data needed to answer their own research questions.
• With the data obtained from one data request, you can write one publication. If you want to write a second publication, you must submit a new data request. A reduced rate applies to this additional request.
• The content, methods and quality of the research are the sole responsibility of the researcher.
• The results of the research must be published publicly.
• The research must be submitted to C-support before publication. Upon publication, C-support receives a copy. At least one C-support employee is actively involved in the reporting and is a co-author.
• The data must be analyzed in an environment that guarantees scientific integrity.

A complete overview of the conditions can be found via the button below.

2024

• Maastricht UMC: PINCOR study: from multi-year Long COVID research; various aggregated insights such as EQ-5D for different patient groups.
• Zilveren Kruis: from multi-year Long COVID research; aggregated insights into types of care providers.

2023

• Amsterdam UMC, PASC study: from multi-year Long COVID research; aggregated insights regarding ethnicity, inviting participants in ethnicity research.
• Lareb: various aggregated insights into patients with complaints after vaccination.

2022

• Amsterdam UMC: aggregated insights into age groups of children, inviting participants to research children.
• UWV: data collection and exchange for research into the resilience of patients.
• Maastricht University: sharing data for additional research into the impact of Long COVID on specific groups.