Join the Patient and Expert by Experience Platform!
In recent months, a working group with experts by experience has worked hard to clarify how patient participation within Q- & C-Support should take shape and content. This has resulted in the establishment of a Patient and Expert by Experience Platform of Q-support and C-support (PEP-QC) to involve patients even better. And for this we are of course looking for enthusiastic members and an (independent) chair.
Q- and C-support wants to optimally meet the needs of patients with its services and develop policy in co-creation, where it is patient-related. That is why we want to explicitly involve patients in setting up patient-related processes and (further) developing guidelines and/or research. Patient participation is not entirely new. Q-support is rooted in a long and good tradition in which the input of patients has been essential in many facets of the organization; research, intake, training, committees, etc. And now this is being reshaped by means of a PEP-QC in order to properly safeguard the input of patients within Q- and C-support
The platform provides solicited and unsolicited advice from the perspective of people affected by Q fever or Long COVID. The members also have a signaling function. The starting point is to conduct the dialogue. In this way, Q- and C-Support work together with patients to build optimal care and service provision.
NB the response period for Long COVID patients has now expired.
