Patient organizations PostCovid NL, the Lyme Association, MECVS Netherlands, the Q-uestion foundation, with the help of Longfonds, are working together on more research, good diagnostics, better care and more recognition. This collaboration is now becoming an official patient alliance and is called: Patient Alliance PAIS (Post Acute Infectious Syndrome). This makes the patient's voice sound clearer.
The organisations have been working separately for some time for more recognition of post-infectious diseases, for targeted scientific research and treatments and for specialised and appropriate care. From now on, they will not only do this separately, but will join forces. In the long term, the alliance can be expanded so that as many patient organisations, patient groups and initiatives as possible that are committed to this target group will be represented in it.
