Materials on post-COVID and other post-infectious conditions
C-support is regularly approached with the request to share books, poems, podcasts and other materials made by patients with other patients. We do not do this, because we do not want to distinguish between the different materials. We have made an overview for you of the materials that we have been pointed to so far. This is for patients by patients.
Anne Vroegindeweij – Book 'The Left Behind - About the forgotten pandemic of Long COVID'
Not only Anne's personal experiences are recorded here. She also shows from (scientific) research what the disease really is and how politics and healthcare could/should respond better to this from her perspective.
Annemieke Ebus-Vermeer – Book 'Super-fast introduction to the mind-body approach'
Annemieke recovered from Long COVID in 2022 when she discovered the mindbody philosophy. She wrote an A5 booklet with concise information about mindbody, interspersed with poems and illustrations and supplemented with success stories. In it you can read how people recover or have recovered from long-term complaints (such as longcovid) thanks to mindbody.
Brenda van Ruitenbeek – Book 'Breathe in, Breathe out – The invisible struggle of living with Long COVID'
The book offers an intimate look at a personal journey with Long COVID and is a tribute to the resilience of all who struggle daily with this complex condition. The book also shares tips and insights in the form of practical insights and strategies aimed at easing the daily struggles that Brenda herself has encountered in her recovery process.
Devarra Janssen – Book 'What the F*cq'
Stories and reflections that come directly from the life of a chronically ill Q fever patient. All in all, a series of columns has emerged with a sober and honest tone, despite the sorrow and pain that the writer has to deal with.
Eva Meijer – Book 'Variations on presence'
Repetition, repetition. In Variations on Presence, Eva Meijer captures the shadow life of a sick person in a prose poem. With long covid you change from person to plant, to carpet, to a word. From the couch, time goes round but no longer forward. The sick person is forgotten, life outside goes on. But the I still exists – the only question is how.
Jorieke Klein-van Hall – Book 'Treating in trust'
In this book, a young twenty-something writes openly about her struggle with this disease, which takes away almost everything she loved to do. Along the way, she has to look for new perspectives to give meaning to her faith and her existence. She makes you part of events, thoughts and her self-written songs that can be listened to via QR codes.
Julia Stoevelaar – Picture talk card set
Beeldpraat is a card set with drawings of non-visible disabilities. The set consists of more than 70 cards in five categories. Beeldpraat's mission is to help people with non-visible disabilities, and their caregivers or loved ones, understand and explain their complaints.
Liesbeth Imbens - Book 'To the buttons – A valuable life with Long COVID'
When it turns out that her energy has halved from one day to the next and does not return, a fight for recovery follows. But sometimes help comes from an unexpected corner. With her hands in the soil of her garden of the Moestuinvereniging De Heikant in Malden, she gains insights that give her life new direction.
Lisette Elskamp – Podcast about long-term battle against Long COVID and her road to recovery
A story about a self-developed in-depth, holistic approach that also includes practical steps for people struggling with chronic complaints and looking for ways to regain their lives. Focused on the eight pillars of health.
Marjan van Herk-Hofstede – Book 'You look healthy Long Covid: physically and cognitively overwhelmed by the virus
In addition to clear information about the condition, paramedical recovery care and research, the book provides a retrospective of the corona pandemic and Marjan's personal story, highlighting the impact on daily life and the harsh reality of living with Long COVID.
Nicole Beerda and Nicole van Leeuwen – Book 'A cuckoo, a virus, mommy and me'
Life changes drastically when you have Long Covid, but what is this like for children with a parent who is affected by it? In “A Cuckoo, a virus, mommy and me” Nicole Beerda, who was affected by Long Covid, and her son and illustrator Luuk van Putten, look back on this, with the help of Joke van Leeuwen. It gives the young reader a handle on how to deal with this disease, with the reduced energy and overstimulation of their parent, but also with their own reactions and emotions.
Nick Beens – NOISE Memory Game
Noise memory playfully simulates what it is like to experience brain fog. The cards with different noise patterns inspired by your own MRI scans are so similar that 'simple' solving suddenly appears very difficult. Normal actions such as focus, memory, following a conversation or remembering things are suddenly very complicated.
Nienke Feberwee – Book and exercise book – Emotion as Medicine
Nienke is trained as a physiotherapist and has developed her own method for the recovery of unexplained, chronic, physical complaints. She has self-published a book about her vision and developed a supplementary workbook. This approach assumes that repressed emotion can express itself physically.
Post Covid Clinic Oxford – Book Long Covid Self Help Guide
Scientific information and practical tips for long-term complaints after corona written by the experts of the post-covid clinic in Oxford and long covid patients. It contains practical advice on how to deal with complaints such as fatigue, shortness of breath, headache or even depression.
Writing bureau Koprollen – Columns 'Post-COVID syndrome: continue to infect'
Columns about, among other things, the symptoms of post-COVID and its effects.
Yvette Buitenhuis – Exercise book 'BACK to YOURSELF – Living with Long Covid'
28 exercises to reconnect with yourself. Relax with online visualizations, train concentration with the labyrinth, observe your breath, be your own coach, see the world from a new perspective, explore your qualities and discover that you still matter.
